Spread Hope and Joy this Holiday Season

This Holiday you can spread hope and joy by donating to the Parkinson’s Association of Central Florida and help your community expand programs and donate to research. Our goal is to help find a cure for Parkinson’s disease and promote those programs that have helped so many in our community. All contributions will be able to better serve the Central Florida communities of Orange, Seminole, Lake and Osceola Counties.

We have a three-pronged mission of research, education, and outreach to help countless people suffering from Parkinson’s disease today and develop better programs for the ones who will be diagnosed in the future. As we expand our programs and continue serving the Parkinson’s community think about making a donation this holiday to the Parkinson’s Association of Central Florida. Thank you for your support and happiest wishes this holiday season. 

 

PACF Donates to Parkinson Research

The Parkinson Association of Central Florida serves as a focal point to raise funds for the Orange, Seminole, Lake and Osceola Counties to support research for new Parkinson’s treatments. PACF is living out its mission and in return donated to help further research to find a cure for Parkinson’s disease. Donations made during our annual fundraiser, Walk for Parkinson and monthly donations made in memory of loved ones have provided funds for research to find a cure for this progressive disease.

 To help benefit the community, PACF supports those individuals who are dedicated to making a difference for Parkinson’s disease. This year we have supported events such as the Art of Fashion hosted by Tonya Walker, an individual who was diagnosed with Young Onset Parkinson’s disease. The Art of Fashion benefited the Michael J. Fox Foundation and over 200 people attended the event to see the latest styles from twenty-four local boutiques and artwork from twelve local artists.

 Another local event held to raise awareness for Parkinson disease was Pints for Parkinson’s hosted by Rose Babcock and her husband, Chris Babcock. In July the World of Beer in Dr Phillips helped host the successful fundraising event. Rose and Chris were able to contact local brewery’s to donate beer that World of Beer placed on their tap system. Each drink was $5 and additional raffle tickets were available to be awarded from raffle prizes that were donated from various breweries and event sponsors.

 These two events brought attention to Parkinson’s disease and greatly improved the community by bringing attention to local businesses at the same time raising funds to be donated to research. Both events took time and dedication to plan in efforts of raising money for Parkinson’s research.

 The Parkinson Association of Central Florida’s Sponsorship donations were made for these two events that helped both individuals reach their fundraising goal. PACF is proud to have such creative and enthusiastic members of the Parkinson community making a difference in the greater Orlando area. We are excited to see the growth of these events as the following year brings about more opportunities. 

Caregiver's Appreciation Month

The Parkinson Association focuses not only on those with Parkinson’s disease, but focuses on how best to enhance the quality of life for those who are affected by Parkinson’s disease. Those who care for a loved one with Parkinson’s disease deserve some praise for their strength and patience with a progressive disease.  Luckily, November is caregiver’s appreciation month and we have been sharing tips, stories, and resources.

To engage more in #caregiverappreciation month you can view our Facebook page and see our posts for caregivers appreciation month. If you enjoy what you saw be sure to “like” our page! Below are links to view all of our posts for the month of November in celebration of those who care for a loved one with Parkinson’s disease. 

Michael J Fox Foundation:  Advice for Loved Ones and Caregivers

Free Caregivers Guide: Advice from Lonnie Ali and The Michael J. Fox Foundation

Parkinson's Disease Foundation: Coping Skills for Parkinson's Care Partners

Caregiver Stress .com: Family Caregiver Distress Assessment Tool

Huffington Post: Encouraging Caregivers With Random Acts of Kindness

AARP Care Connection: 11 Affirmations for New Caregivers

Caregiver Action Network: 10 Tips for Family Caregivers

Charity Miles App Helps Parkinson Research

Moving and staying active is important to improving health and wellbeing especially for those with Parkinson’s disease. Not a runner? That’s no problem! This free app allows you to earn donations as you sweat. Track your exercise miles with the Charity Miles app and earn 10¢ per mile for bikers or 25¢ per mile for walkers and runners. The App is free and businesses such as Johnson & Johnson and Humana sponsor each individual who logs into the app. You can achieve your fitness goals by tracking how far you've walked, run or biked AND earn money for your favorite charity while doing it! This App has joined with over 30 different National charities including the Michael J. Fox Foundation, which donates directly to Parkinson’s research. We challenge you to get up and get moving with a purpose and earn money for charity.

How to get started with Charity Miles:
1. Download the app.
2. Create a login name
3. Join team PACF
4. Choose your charity
5. When you walk, run or bike track your activity mileage.
6. Earn money for your chosen charity for every mile you move!

Faces of Parkinson - The Love of the Game

Meet John Fisher. He is an avid golfer, tennis player, and fisherman. John is the husband of Gail, father of five, and grandfather to eleven beautiful grandchildren. He met his wife while they were attending the University of Illinois, got married two years later and started growing their family.

In 2005 John received the official diagnosis that he had Parkinson’s after seeing a neurologist. Prior to the diagnosis he lost his sense of smell, an early symptom of PD.  While in college, John had a summer job where he was exposed to the solvent trichloroethylene. This chemical has been linked to the later onset of PD. Eventually John’s primary care doctor recognized his complaint of his small handwriting (micrography) when he would write so his doctor suggested he see a neurologist.  At first the news was shocking since he was diagnosed shortly after retirement and hadn’t planned for a chronic illness. Even though Parkinson’s presents some challenges it hasn’t stopped him from doing the things he loves.

John is involved in many of the Parkinson’s specific exercise programs and enjoys them all. One of his favorites is the Golfing for Parkinson’s program. John Hughes is the instructor who is a PGA Master Professional, and founded the program. On the second Tuesday of every month the group meets at Falcon’s Fire Golf Course to play. Each month there is a solid group of golfers who come out and play.

John has participated in golf all his adult life therefore he knew he would enjoy John Hughes’s group. He plays with his golf partner Larry, who he met in the Pedaling for Parkinson’s group. Since he joined, John has made tremendous improvements to his swing. John Hughes provides lessons and shows each player that having Parkinson’s doesn’t stop your ability to play the sport.

These Parkinson’s specific exercise groups help make connections with people in the community and bring about new and special friendships. Becoming involved in not only the exercise programs, but the support groups can provide knowledge that isn’t always provided online. For those that are diagnosed, John suggests finding a neurologist who is specialized in movement disorders. He visits a specialist at the University of Florida’s movement disorder clinic where he has participated in more than five trials. Having knowledgeable doctors and staying active are important for those who are diagnosed with Parkinson’s. Keep moving and staying active in your every day life and continue doing the things you love to do.

 

 

 

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Buying Candy this Halloween?

Buying Candy this Halloween? Did you know that you can shop for your treats, costumes, and decorations at smile.amazon.com and Amazon will donate to Parkinson Association of Central Florida, Inc.? Click on the link and start your shopping today!

#StartWithaSmile at smile.amazon.com/ch/45-5464483 to stock up for Halloween and Amazon will donate a percentage of your purchase to PACF!

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Faces of Parkinson's - A Young Diagnosis

Meet Tonya Walker. She is a vibrant blogger, Team Fox fundraiser and mother to her son, Chase and wife of Chad. She enjoys spending family time riding bikes, boxing, and watching movies.

Tonya previously worked at a law firm in Jacksonville where she met her husband Chad. The two were friends for several years and one day realized they had a connection deeper than friendship. In December 2005 the two were married in Savannah, Georgia at a lovely bed and breakfast. Just two months after the two tied the knot Tonya became sick with a virus. It was after that illness when Tonya realized something felt different.

Shortly thereafter she noticed her left arm stopped swinging when she walked. After a visit to the doctor they did an initial diagnosis and thought it was Multiple Sclerosis, but her doctor referred me to a neurologist for further evaluation. Once Tonya went to the Neurologist they were able to rule out Multiple Sclerosis. He then thought she had Parkinsonism. Since Tonya and her husband were newlyweds and wanted to have children he decided not to put her on any medications due to unknown reactions of women during pregnancy.

A few months later and Tonya became pregnant in October of 2006. Unfortunately, the pregnancy was tough and her Parkinson’s symptoms were exacerbated by the changes of her body. By the end of her pregnancy Tonya struggled with dressing herself. Thankfully, in June of 2007 Tonya and Chad become parents to a healthy baby boy.

After her son was born Tonya showed little signs of improving her mobility. She saw a Movement Disorder Specialist at the Mayo Clinic and within 10 minutes was officially diagnosed with Parkinson’s disease. This news came to little surprise to her since she had been researching her symptoms online.

In the beginning it felt surreal and she became in denial of the diagnosis. After all she was only 34 years old and part of a smaller population who struggle with these complications. The news settled in and Tonya decided she wanted to be active in the Parkinson community and wanted to give back any way she could. Years later Tonya had the pleasure of meeting Anissa Mitchell, Parkinson’s Outreach Program Manager at Florida Hospital who reached out to her when she read her fashion blog. From there Anissa invited her to attend a support group meeting where Tonya was able to connect with another young woman who was also diagnosed with Parkinson’s.

In addition to the support group, Tonya hosted, along with her husband, Team Fox fundraisers to benefit the Michael J. Fox Foundation for Parkinson’s Research.  They created The Art of Fashion as a fundraiser in 2015. The idea was to merge her love for fashion and her desire to raise awareness of Parkinson’s disease. The first year went well in their efforts to raise money so they decided to do it again in 2016. This past year she raised nearly $7,000 and had 200 attendees.

Tonya attributes her motivation and drive to her loving family and her strong faith in God. Their constant support inspire her to get up every day and fight the symptoms of Parkinson’s. With the support from others in the community, Tonya has had helped accept her disease and found her inner peace.

Want to connect with Tonya? Visit her blog site!


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AmazonSmile Foundation Can Donate 0.5% of Your Regular Purchase

Do you ever shop on Amazon? If so, do you know about AmazonSmile? When customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers. The Parkinson Association of Central Florida is eligible to receive to receive donations.

When first visiting AmazonSmile, customers are prompted to create or login using their Amazon account. Once your username and password are entered the next step is to select a charitable organization. The Parkinson Association is one million eligible organizations that Amazon donates to. In the center of the screen is a search bar. If you would like to donate to the Parkinson Association of Central Florida type our organization’s name in there. From there you are free to shop and purchase the item you wish to receive. At the end you will be able to check out as normal and the AmazonSmile Foundation will donate 0.5% of the purchase price to the selected charitable organization. Yes, you can give back while still purchasing your regular items from Amazon. Get started now.

 


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Living with Parkinson’s Video

Living with Parkinson’s video featuring Brian Grant, scheduled keynote speaker at the Parkinson’s Brain and Beyond Conference on Friday, March 31, 2017 at the Hilton Altamonte Springs. At the conference Brian will share additional insights into his experience of being diagnosed with young onset Parkinson’s and how he has used his experience and history with the NBA to promote awareness and living well with the disease. Watch the video to hear more stories. 


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Faces of Parkinson's - Falling in Love With Parkinson's

 

Falling in Love With Parkinson's

Meet Rita Husmann-Chesnut. Rita was diagnosed with Parkinson’s disease in 1985 and attends the support group meetings at Florida Hospital Church. She is a native from Sverdlovsk, Siberia who immigrated to America in 1952. Rita was married for 48 years to Rolf Husmann and had 3 sons. Unfortunately, Rolf passed in 2003 so Rita adjusted to a content single life. Little to her surprise God had another plan in store for her.

While attending the Parkinson support group meetings she began to meet others who shared similar life experiences. Rita found comfort and strength from the group members who supported her journey. One day she heard of a gentleman who was a member of the Elk’s Lodge who had been diagnosed with Parkinson’s disease. Rita reached out to him to see if he would want to attend the support group meeting. He turned her down and said he would call her again another time.

True to his word, David Chesnut called her back and invited her to dinner. While the two of them were at dinner at the Elks Lodge, David talked about how he loved to travel, play golf and spending time with his friends. Rita enjoyed learning about him and explained how the support group meetings have helped her accept her illness. Noticing his trembling hands she instinctively reached out to grab his hands and lightening hit her. It was a miracle; God spoke to her and told her that she must take care of him.

Realizing the two needed one another she was reluctant, after all she had some struggles of her own and three years prior had lost her husband of 48 years. Rita felt such a strong connection to David who she can share her illness with someone who truly understands the struggles along with the disease. David felt the same connection and on their third date he asked Rita to marry him.  She said yes and their love continued to grow.

David and Rita did have a few hurdles to overcome including some differences when it came to eating. Rita was into borscht and blitzes, wiener schnitzel and sauerkraut  while David was a true southerner who loved fried food, chicken and dumplings, grits and bacon. David was a good sport and loved everything Rita prepared for him.

As their lives continued their families grew to 10 adults, 5 grand children, 9 grand puppies and numerous turtles. David’s health eventually got worse and Rita’s son Craig helped care for him to ease his discomfort. Unfortunately, on October 13, 2015 David passed peacefully. The two spent nine and a half beautiful years together enriching each other’s lives. Rita thanks God for the time they shared together. Pat Boone used to sing, “love is for the very young.” Rita disagrees and believes love is much better when you are older. The two had a strong love, a patient love all brought together by Parkinson’s.

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